I get why they do this, suicide prevention is no joke and should be handled by people that trained for it, some commenter trying to help could cause a lot of harm without meaning to do so and someone that’s not in a good mental space could become triggered and/ or spiral into suicidal thoughts themselves after reading these kinds of subjects.
That said, perhaps the mods could link suicide prevention hotlines from all over the world (as you already do for different resources on -TherapyNeurodegenerative Disease Support, ADHD, Autism, Fibromyalgia, etc.). If I were me, Id put those as front and center as posible, and as easy to find as posible by those who need it (say, quote it after the rule about suicide, include it in the resources given, maybe highlight it).
Suicide.org has some great guidelines on how to mention suicide in the media (not the same thing as a mental health forum, I know, but I personally find them very useful regardless when it comes to discussing anything suicide-related on the internet, where you never know who is reading your content).
And remember, if you or someone you know is feeling suicidal, there’s help out there! there’s people willing to work with you to get through this, please reach out to them.
It depends A LOT on your country and health system / coverage among many other things. But here’s my two cents based on a country with public healthcare.
It is a common cathegory in neuropsicological evaluations when a person starts refering to cognitive difficulties that may or may not be quantifiable as of yet. We put this group under “cognitive complain”, sometimes their evaluation reveals actual changes in cognitive performance, sometimes it doesn’t. This group sometimes progresses throughout the years into dementia, but not always, since many factors can impair your cognitive habilities (stress, depression, anxiety, other conditions like MS, etc.).
The laboratory could benefit then from providing a bunch of hospitals that perform these evaluations with the tests to diagnose the profile they need for the medicine to work (as Ive seen done in my country with many conditions, including rarer types of cancer and rare genetical disseases). The lab benefits cause otherwise, no one would buy the drug and no coverage would approve it without proof its going to work. This works becuase anyone, money or not, can schedule an evaluation and these hospitals when they have cognitive complaints.
There´s also clinical trials and or other research projects usually in place in these kinds of hospitals, already studying and performing various tests on dementia patients. Elly lilly just has to find and support a PHD project that studies amyloid buildup and then everyone participating gets tested (and then referred somewhere for treatment with the drug). I dont wanna reveal too much of my life on the internet but Ive seen something awfully similar to this first hand in my own country, a bunch of families got genetical testing for dementia for free, then everyone positive to certain genes got referred for treatment.
As research progresses, some other laboratory may come up with a drug that works for a different type of dementia profile, and then it gets easier because they often strike up deals between the two laboratories. They both eat up the cost of testing, since one of them is likely to benefit from it. It is already done this way for genetical testing for rare disseases (again, we are talking a country where the patient does not need to pay or just pays their monthly fee for private coverage but no extra for these things cause they are covered by law).
Then all they need is to get their medication approved and included in the lists of medicines that are covered by law. There’s health coverages specifically for older people that often get deals with the laboratories of medications their patients are more likely to need. you get the ball rolling, probably a patient support program that can help with adherence and provide guidance to the patients and their families as to which documents to submit and where to get their medication covered.
What I mean is, its going to be different in different places, but there are already plenty of medications that require prior testing (sometimes really expensive testing) so the pipeline is already in place. I know nothing of amyloid buildup, but if there’s any chance its genetic, then the easier it will be (cause then you take current dementia patients and test their families).
Copy paste a bunch of Lorem Ipsum and you’re done
Remember all those posts that sometimes will come up in r/relationship advice or subs like that portraying really vulnerable people that are really down on their luck (“Im a single mom/dad and have to do horrible things so that my children can eat” “Im an abused teen and can’t escape my home” “Im trying to escape a borderline cult” etc etc)?
Now, Im sure at least some of those were fake to begin with (I don’t have anything against those subs or those stories, but you can’t guarantee every single one of them is true). Now imagine if they could put a little edit in the end “thank you all, you are so kind, I managed to sign up into reddit’s content program, so if you want to help make sure to upvote and leave some gold, it means so much”.
In those subs, people were already helping out how they could (I would often see people offering to send food or stuff to OPs home, things like that)… so that’s not gonna backfire at all if its implemented.
Imagine if the songs The KKK Took My Baby Away and Fire of Unknown Origin (took my baby away) are talking about one really unfortunate baby that keeps on being taken away by random stuff.
Yeah, I gave advice on some smaller / niche, topics. I didn’t delete the whole thing, only my most upvoted and/or most recent comments (I went all the way to december 2022, and every comment with more than 20 upvotes). Replaced it all with a link to my kbin.
It was kind of sad reading all the replies that were like “we should put this comment in the FAQ / this is the best comment / this covers everything”. I was very throughout and loved speading what I learned, and it pains me a little the few times I lurked in those communities since moving to kbin and see lots of unanswered pleads for advice or straight up terrible advice being given…
Some people fake it with children to fake appeareances (they may not care about the child, but they do care about the opinion of the parents or anyone watching), I find it way more telling when looking how they treat animals and pets, since those are often percieved as “inferior beings” and its harder to fake it.
I personally trust my dog’s opinion on people upon meeting them.
Reposting a comment I made somewhere else on the site cause people are finding it useful.
Im not a mod, but on a smaller scale on my own profile, I grabbed all my most upvoted comments (started from the really upvoted ones until I reached 20 upvotes or so) and edited them out to only leave the first few phrases or words. Then inserted a message that read:
“This used to be a full comment, you can find more resources in the link bellow since I have moved to kbin and reddit doesn’t deserve my content! Bye reddit, you won’t be missed!
For more [subject] advice, find me on https://kbin.social/m/[subject]”
Bonus points if I could cut the comment out at the exact time it was about to become useful “Whats actually going on here is that…”
Did that sorting by most upvoted and also my fresh, since it wass manual I only managed to do so much, But I liked the approach better than just deleting it all or editing with “fuckspez” so that they could get back and revert it.
May not be the solution for everyone, but if you made and posted some important self-made content on reddit (say a guide of some sort, a compendium of usefull resources, etc), editing it out like that could work to keep it gone and redirect trafic to the fediverse.
Since its manual you can’t do it for all content, but you could do it to anything important you built in that community.
Anyone working on reddit might benefit from contacting some of the people that used to work on twitter, just so that they are prepared for what’s to come y´know.
I mean spez already said he admires Elon Musk’s directive of twitter, it doesn’t take much to know that its going to turn into a very shitty place to work for if it hasn’t reached that point yet.
I do think protests achieved so much. They made a lot of noise, put spez’s terrible handling of the situation under the spotlight right before IPO.
And honestly, even if spez doesn’t go back on the API pricing (which he probably won’t), having subreddits protesting and fleeing to the fediverse puts the writing on the wall for other shitty platforms (current or to come).
Back when Elon started destroying twitter I did not get how mastodon worked, but I do see myself working around it now I figured out kbin (although Im not on twitter all that much to justify switching right now), can imagine is the case for anyone fleeing to the fediverse.
Didn’t even know what a 3rd party app was until the protests (never used reddit on my phone to limit the amount of time spent there, and was never very tech savvy).
Left because of other reasons, like a couple mods of communities I love packing up and leaving and the sheer principle of it all.
They are probably not gonna get backpay, but what this could achieve is to force reddit’s hand in legally recognizing mod’s work from that point on and giving the mods more standing than they have now.
At the very worst, it sends a message and helps to continue bringing to light reddit’s shitty practices.
If you are at desktop, the comment box is at the bottom of the page
Probably she wanted to stall the process as much as posible so that they could bill the service some more before cancelling.
That or they have a script to make the service as hard to cancel as posible and she was just parroting that, without really paying attention to what OP was saying.
Oh yeah, Back on reddit I never checked the notifications on my comments. I liked giving the advice but got terrible anxiety when someone answered because I knew there was a fifty-fifty chance of someone flying off the handle. Making it even harder, english ain’t my native language and from time to time if Im tired I mess up.
In here people have been so nice, even as Im learning and messing up how to work this platform.
I dont get it either, Ive been browsing different instances(? and when I find some community I like I search it up in kbin (which Im trying to make my main account I guess) by copying that little bit that comes up that says “copy and paste in your node’s search bar”, If I cant join from kbin I make a new account and join from there.
Its whatever, Ill figure it out eventually.
Oh dude that’s awesome!
I work with MRI files all the time, I can’t believe I never thought this was something you could do with them.
This whole time for educational activities we have been carrying around the real things preserved inside a glass like maniacs, instead of, you know, a pretty 3d model that does not get kids asking us deep or gory questions about death.
Here is to hoping your time will come!
If its any help, Ive noticed these require way more water than your average succulent. They like a big drink as soon as they start getting wrinkly and they do that quite often.
Seconded!