• reddig33@lemmy.world
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    8 minutes ago

    23andMe has a “request data deletion” feature. I don’t know if it actually works, but it’s worth a try if you’re worried about it.

  • LibertyLizard@slrpnk.net
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    4 hours ago

    The worst thing is I’ve never consented to them having my DNA but they have half of it anyway thanks to my brother…

  • girlfreddy@lemmy.ca
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    5 hours ago

    DNA might contain health information, but unlike a doctor’s office, 23andMe is not bound by the health-privacy law HIPAA. And the company’s privacy policies make clear that in the event of a merger or an acquisition, customer information is a salable asset. 23andMe promises to ask its customers’ permission before using their data for research or targeted advertising, but that doesn’t mean the next boss will do the same. It says so right there in the fine print: The company reserves the right to update its policies at any time. A spokesperson acknowledged to me this week that the company can’t fully guarantee the sanctity of customer data, but said in a statement that “any scenario which impacts our customer’s data would need to be carefully considered. We take the privacy and trust of our customers very seriously, and would strive to maintain commitments outlined in our Privacy Statement.”

      • piecat@lemmy.world
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        2 hours ago

        Honestly terrifying. Once that info is out there, who knows what could happen.

        Will insurance use it to see if you’re pre-disposed to something and charge more?

        Will a fascist group use it to find groups they think are undesirable? What if there’s a genetic component or predisposition to being gay/trans?

        Will future terrorists or governments use it to engineer a virus that only affects a group of people? Assasinate an enemy and their entire family?

          • Viking_Hippie@lemmy.world
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            24 minutes ago

            There’s a podcast sequel to Orphan Black

            Squeals like a little girl and heads to AntennaPod app

            Edit: EEE it actually stars Tatiana Maslany herself! 🥰

            • Dharma Curious (he/him)@slrpnk.net
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              4 minutes ago

              It’s honestly so freaking good. I really wish they’d make another season, but I don’t see it happening now that they’ve done Echos (which I haven’t seen yet, no spoilers!). My only complaint is the first season doesn’t have Felix’s voice actor, but season 2 does, and it’s fantastic.

        • antlion@lemmy.dbzer0.com
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          1 hour ago

          You should probably just assume that your genetic information is already or will be out there at some point. If you want to protect against how it could be used against you, my suggestion would be to change your last name from a genetically-based one to one chosen by you. It isn’t foolproof since the name change is public record, but it creates a firewall that makes it harder.