I suffered terrible OCD from age 4-27, once diagnosed and I did ERP it finally eased off, rarely have episodes today… around the same time I got iBS following antibiotic treatment (circa 2011) - guts are never the same since. The last two years I’ve felt intense fatigue and depression - the gradual onset left me thinking I was “getting old” at 38(!)

NOW, almost by luck I was off 2 weeks with bad IBS and finally got referred to specialist who was almost certain I have celiac(!?). Gastroscopy and colonoscopy confirm this last week. I’ve been off gluten almost a month and am DESPERATE for recovery.

Work is humiliating when I battle to focus 2/47, a physical head pain whenever I’m interrupted or have to guess what a customer wants. Home life is a battle just to deal with bills, finance decisions repairs etc because I can’t focus. Simple decisions are like algebra problems :(

I’m trying to take a needed vacation next month and can barely focus enough to plan it.

some folks have no digestive issues but diagnosis comes after purely mental symptoms

Recent studies

  • craftyindividual@lemm.eeOP
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    1 year ago

    Sorry for the long post and scrambled ideas, it’s hard to put everything in the right order or even remember things right at the moment. I wonder if anyone else has a gut- brain illness connection they weren’t aware of until later?

    • 108beads@lemm.eeM
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      1 year ago

      No need for apology! In fact, it seems gut microbiome may be related to a number of brain or mental health issues. I’m especially interested in Alzheimer’s—there’s some evidence of a relationship, although exactly what seems very fuzzy and (as yet) ill-defined. I know that when I’m having digestive issues, I am definitely out if left field.

      • craftyindividual@lemm.eeOP
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        1 year ago

        I wish it was better understood. For me it’s damage to surface of intestine that means I can’t get iron to my muscles and brain, boy do I need those nutrients.

    • craftyindividual@lemm.eeOP
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      1 year ago

      Thanks, I probably will. Every thought I have is filtered through a weak mind that doesn’t have proper nutrients and iron But when it does recover I will see clearly … I hope 🤞

  • Zeppo@sh.itjust.works
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    1 year ago

    Yes, i can back this up. I had undiagnosed celiac for decades and during that time I experienced all sorts of MH symptoms - depression, difficulty concentrating, and ADHD and OCD-like effects. They 95% evaporated when I was finally diagnosed and went GF.

    • craftyindividual@lemm.eeOP
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      1 year ago

      It’s good to hear from other sufferers (that recover!). At the moment I’m super hungry … potentially a good sign. Trying to eat until body feels full whatever time if day - damn the expenses of gluten free food in stores I just need to feel better asap. (of course preparing cheap simple meals when I have the energy and brain function at home)